Motor neuron disease: ‘It doesn’t affect just me, it affects the whole family

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Using Global Awareness Day to amplify the voices of people living with MND in Ireland


Two years ago Eileen Butler started to notice her voice was changing. Words were beginning to sound different; her mouth wasn’t moving in the same way it normally did. Nobody else could hear it, but she knew something was wrong.

The 53-year-old mother-of-four recently had teeth extracted, and thought that could be the reason why her speech had changed. After undergoing tests, and ruling out other neurological conditions, she was eventually diagnosed with motor neuron disease (MND) last year.

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