ILMI eBulletin 12th April 2024

Posted on April 17, 2024April 17, 2024 by Cork CIL Admin

ILMI eBulletin
ILMI eBulletin 12th April 2024

In this issue:
Committee on Disability Matters
UCC
Feminist Climate Justice
VOICE

ILMI at the Committee on Disability Matters

“My name is James Casey and I am from ILMI – a Disabled Person’s Organisation. Not only as per the criteria outlined in the UNCRPD but also in terms of social justice and historical movements. We were established in 1992 by disabled people for disabled people and we continue this legacy by harnessing the collective lived experience of disabled people in Ireland and facilitating, objective, authentic agency to their perspectives.

Independent living is an aspiration for every person, disabled or non-disabled. It is not perhaps so much living on your own but rather living a life of self – determination whatever form that takes. However it is not a segregated life – whatever guise that is presented in. It is living and thriving and contributing to our communities. Nonetheless, to reach these goals, we must co-create, collaborate and monitor the policies, rights and strategies that enable us to achieve them. This can only be achieved with Disabled people and their organisations.

DPOs are crucial conduits of the collective authentic disabled person’s perspectives. Without authentic DPOs then we cannot move from single issue-based policy targets to more strategic and nuanced policy objectives. DPOs give policy makers structure of consultation but more importantly, they also give policy makers access to authentic, citizen generated data and critically, the opportunity to move from consultation to co-creation of policy. This makes for better policy, which makes for better outcomes of opportunity for those it affects, which leads to a more healthy and inclusive society. DPOs allow for strategic thinking and for accountable representatives to bring agreed actions and targets.

Although individual disabled people can and do bring their own issues via self-advocacy to local or national structures they cannot bring an authentic cross-impairment, collectively mandated, intersectional analysis to develop or inform policies. There are numerous examples of policy making spaces where the State recognises the primacy of collective autonomous spaces for people who experience social exclusion. Disabled people need to be resourced to participate, recognise and celebrate the value of collective empowerment in DPOs. Conversely, self-advocacy and advocacy cannot be managed or facilitated by service provers or their representative groups, This is incompatible due to power dynamics, it is not impartial and it is not in the ethos of the CRPD and indeed is against the basic tenets of our democratic and social contracts.

A structured, objective conduit of agency – such as a DPO like ILMI, enables disabled people to articulate their perspectives and lived experiences of issues in a strategic fashion, without a conflict of interest or a fear of reprisal.

The CRPD is clear on the prominent position of DPOs in advocating for disabled people and this is rather detailed in several articles.

What is less clear is the misrepresentation of whom is speaking for the collective wishes and experiences of disabled people.

In the absence of DPOs, many organisations and individuals have claimed to speak on behalf of disabled people contrary to the aims of the CRPD. This is perturbing, it is undemocratic and puts the social contract under yet more strain. The cooperative strategic input of mandated DPOs have to be recognised as how to realise the CRPD and build the participative democratic inclusion of disabled people in the design and monitoring of policies and practices to realise our rights. Allies are welcome and appreciated but they cannot speak for disabled people nor can they claim the mandate to do so – this puts our democratic and representational processes under question.

ILMI has a demonstrated track record and values driven collective ethos to be best placed, with our fellow DPOs, to facilitate and co-create meaningful polices and strategies. Our projects such as ONSIDE and SFC are unique, transformative, successful and led by disabled professionals – they, we believe, have contributed, like the rest of our efforts, to shift the paradigm of disability in Ireland to a more modern, human rights and equality perspective. As a DPO, ILMI has endeavoured continually to make disabled people part of the greater conversation about diversity and true inclusion in our society and we recognise active ally ship with other marginalised and equality based organisations and groups. We have always worked diligently with the collective good driving our efforts.

But we are under resourced, undervalued and underrepresented. When we consider the disability industry in Ireland is funded to many billions in public money then we see how truly small our financial support is yet how big our impact has been. But we need support – long-term, multi-annual financial supports and otherwise. We have shown to be a catalyst for change and an authentic voice for disabled people, we have added to the discourse of social justice and environmental concerns. We have always tried to bring people together rather than apart and we have always done this with our values at the core of our work.

ILMI recognises, supports and values the intersectionality of disabled people and the multiple forms of discrimination they may face. We share and promote common goals with Social and Climate justice groups, Women’s Rights groups, LGBTIQA+ Rights organisations, Traveller Rights groups, Anti-Racism groups and people of colour groups. We do as it is the right thing to do, not by division or othering – but by active solidarity and collective agency with solution based policies based on the collective voice. This is how can achieve a more inclusive and fairer balanced society – we always will have more in common than we ever will have apart..”

Oireachtas Link to PDF statement here

UCC
IMAGE: Nicola Meacle at the Patient Public Involvement in Clinical Research Event in UCC

ILMI’s Nicola Meacle (VOICE Community Development Worker) attended a workshop on Developing Patient and Public Involvement (PPI) in the School of Clinical Therapies It took place on Thursday, the 11th April on UCC. It was an opportunity for people to discuss ways to develop a System to ensure patient and public involvement in research in the clinical Therapies. Dr Alice Moult, Research Fellow and Academic Lead for Patient and Public Involvement and Engagement from Keele University gave a Presentation on research on PPI in the UK. This was used as a terms of reference for the discussion and exchange of ideas that followed.

Feminist Climate Justice

Orla Burke, an ILMI member, attended the launch of the report on Feminist Climate Justice at UCC. Speaking from a disabled person’s perspective, Orla highlighted the critical intersection of disability and climate justice. Attending the event as a representative of ILMI, Orla emphasised the significance of climate justice for disabled people.

ILMI VOICE going from strength to strength

IMAGE : text that reads ““When other people see you as a third-class citizen, the first thing you need is a belief in yourself and the knowledge that you have rights. The next thing you need is a group of friends to fight back with.”
― Judith Heumann

Are you tired of feeling overlooked and powerless as a disabled person in Cork, Tipperary, Wexford, or Waterford? VOICE is here to change that narrative. Created by disabled people for disabled people, VOICE offers more than just a support system; it’s a dynamic community fuelled by empowerment and action. If you’re ready to stop thinking “that’s just the way it is” and start making a real impact, VOICE is your platform.

By joining VOICE, you’ll not only connect with peers who understand our challenges as disabled people but also receive a free Lenovo tablet, along with comprehensive training and coaching. This isn’t just about technology; it’s about giving you the tools and confidence to assert your rights and shape your future. Together, we’ll challenge stereotypes, break down barriers, and build a society where everyone’s voice is heard. Join VOICE today and unleash your power to create change.

“And the best part? It won’t cost you a thing. This program is all about empowering disabled people to unleash their greatness.” NM

Contact:
– Nicola Meacle (VOICE Program Officer for Cork and Tipperary): nicolameacle@ilmi.ie | 087 718 9237
– Paula Soraghan (VOICE Program Officer for Wexford and Waterford): paulasoraghan@ilmi.ie | 087 163 0433

Why not explore the wealth of resources available to you on our website: from our strategic plan to our invaluable SFC resources and our policy documents and submissions. At our core, we’re a cross-impairment disabled person’s organisation dedicated to tackling the topics that matter most. Let’s continue our journey toward inclusivity and empowerment together! If you want to know more or sign up and get involved in our work please email info@ilmi.ie

HSE Health and Wellbeing Weekly Update 11/04/2024

Posted on April 17, 2024April 17, 2024 by Cork CIL Admin

In this episode of the HSE Talking Health and Wellbeing Podcast, we talk to Dr. Michael O’Dwyer and Aisling O’Rourke about Sepsis, a critical health issue. Aisling shares the heart-wrenching story of her father’s battle with Sepsis, emphasising the need for awareness and timely recognition of its symptoms. Dr. O’Dwyer, the HSE Sepsis Programme’s Clinical Lead, educates listeners on the dangers of Sepsis and the urgency of early intervention, particularly for at-risk groups. The episode serves as a poignant reminder of the role caregivers play in patient advocacy and the life-saving importance of asking, “Could this be Sepsis?”.

For further information go to: https://www2.hse.ie/conditions/sepsis/

Please leave us a review on your chosen podcast channel or on the HSE Health and Wellbeing YouTube channel to promote the content to others who are interested in the area, and to get in touch with the podcast email Healthandwellbeing.communications@hse.ie.

Tobacco Free Campus Webinar – Thursday, 25^th April 2024

The HSE Tobacco Free Ireland Programme are hosting a webinar on Tobacco Free Campus on Thursday, 25^th April @ 10am. Registration details here: Registration Link

Stop Smoking Advisors Online Symposium – Wednesday, 17^th April 2024

The HSE Tobacco Free Ireland Programme are hosting an online symposium for Stop Smoking Advisors on Wednesday, 17^th April @10am. All Stop Smoking Advisors are encouraged to attend the online event. Registration Link

Alcohol and the Heart Explained

Which cardiovascular diseases does alcohol cause? Why do observational studies suggest moderate drinking is good for the heart? And how has the alcohol industry tried to influence worldwide research on the topic.

The latest film from the Institute of Alcohol Studies in the UK – Alcohol and the Heart: Explained – delves into this topic and features Professor Annie Britton, Head of the University College London Research Department of Epidemiology & Public Health. Please share with any colleagues, students, friends, or family you think would find it informative and useful.

Webinar 11^th April: Obesity, Mental illness and eating Disorders: Dispelling myths and practical tips.

This webinar which has been shared with Dieticians will be hosted by the Obesity National Clinical programme designed for Community Dietitians working in chronic disease and involved in self-management education and support programmes. The panellists include; Community Mental Health Dietitian Manager, Dietitians working in specialist eating disorder teams, Health Psychologist and a Dietitian Manager in the Centre for Obesity Management in Loughlinstown.

This webinar is a knowledge sharing event and aims to support Community Dietitians to:

Understand the link between mental illness and obesity

Learn more about the prevalence of eating disorders in people with obesity, care pathways and practical supports available

Understand the spectrum of eating patterns/non pathological disordered eating in the context of obesity

Learn more about the role of the obesity dietitian in assessing patients with mental illness, eating disorders, non-pathological disordered eating patterns

Understand what specialist services are available for eating disorders and obesity

West Cork Sports Inclusion Showcase

Posted on April 17, 2024 by Cork CIL Admin

Dunmanway Sportsability Inclusion event is taking place Friday May 17^th 10.30-1.30pm.

Showcasing activities for people with disabilities. We welcome children and adults of all ages, whether they come individually or in group (school, or disability day services for example.)

You are more than welcome to get involved by facilitating an sports activity as a club or by having an info stand if you wish. It’s Friday May 17^th 10.30-1.30pm

Please also pass this on to any other activity clubs/organisations or volunteers interested in joining us too!

We want the people of Dunmanway and the wider West Cork community to come together and celebrate inclusive sport and physical activity for people with disabilities.

Below is the activity register link

https://form.jotform.com/Barry_admin/west-cork-sports-inclusion-showcase

Registration for public attendees or groups will open Monday! Keep an eye out on social media.

“Working together to keep Cork Active”

HSE Talking Health and Wellbeing Podcast, Episode 50 – Gut Health

Posted on April 8, 2024 by Cork CIL Admin

In this 50th podcast episode, Geraldine Sexton, a HSE Senior Project Dietitian, from the HSE Healthy Eating Active Living Programme, talks about the importance of having a healthy gut. She encourages us to think about how to expand our plant based diet, with tips and tricks for young and old people who may not like plant foods. Geraldine also addresses common misconceptions about our digestive health. Finally talking about how Gut Health can play a significant role in our mental health.

Effective Communications on Child Health and Obesity Webinar

Two girls sitting on swing eating apples and laughing.

In case you missed our recent Effective Communications on Child Health and Obesity Webinar or would like to watch it back, you can access it here.

This webinar, hosted by Sarah O’Brien, National Lead, Healthy Eating & Active Living Programme, HSE Health & Wellbeing, with Presenter Sophie Gordon, Principal Communications Strategist, Frameworks UK, launched the New Communications Guide for talking about children’s health and obesity.

In association with the National Healthy Childhood Programme.

20 years since Ireland banned smoking indoors

Tomorrow, Friday 29 March, marks the 20th anniversary since the government introduced the Public Health (Tobacco) Act banning smoking in all workplaces, bars and restaurants. Since 2004, smoking in Ireland has reduced from 27% to 18%, with 800,000 people having stopped smoking in that time, saving countless lives in the process.

The HSE Quit service provides personalised, evidence-based plans, tailored to each person’s needs. For more information and support visit Quit.ie or call the Freephone Quitline 1800 201 203

Reminder:

Steps to Health challenge 2024

The Steps to Health encourages staff to increase their physical activity levels to improve their physical and mental health. The challenge will take place for 5 weeks, from May 13^th – June 16^th, and registration opens tomorrow, Friday 22th March.

Want to participate?

Form a team of between 2 and 10 participants
Choose a team co-ordinator and a team name
Register your team online
Use a tracking device to count your steps during the challenge
If you have restricted mobility or are a wheelchair user, measure your physical activity levels using tracking devices or an app on your phone

Visit hse.ie/stepschallenge for more information.

Stress Control Programme – Two weeks left

There are two more weeks left of the HSE Stress Control online programme, please share and promote with your staff and to the public. The online HSE Stress Control programme helps people to learn about and recognise stressors and signs of stress in their own lives, including the effect stress can have on thoughts, behaviour, and the body. It teaches skills to reduce stress and boost wellbeing through various relaxation methods.

For more information visit www.stresscontrol.ie

Save the date – NUIG Health Promotion Conference 13^th June 2024

Image of tree in different colours

CALL FOR ABSTRACTS

The call is now open for the submission of abstracts that address the conference theme and objectives, with a goal of attracting researchers, practitioners, policy makers and other interested parties. This year we are seeking abstracts for oral presentations, lightning talks and poster presentations. Closing date for abstract submission is Monday 8^th April, 2024, link to Abstract Submission Form here.

HSE Health and Wellbeing Weekly Update

Posted on March 27, 2024 by Cork CIL Admin

HSE Talking Health and Wellbeing Podcast, Episode 49 – Alcohol Support Services

In this episode of the HSE Talking Health and Wellbeing Podcast, host Noreen Turley speaks with Dr. Colin O’Driscoll, Clinical Lead Psychosocial Services, and Eleanor Keogh, Project Worker, both with the Mid-West Alcohol Service, about the HSE Integrated Alcohol Service. We hear about this service, how it works with community agencies to offer personalised support for those with alcohol concerns, ranging from mild to severe. They discuss the high level of alcohol consumption in Ireland, emphasising the service’s collaborative, non-judgmental approach and stress the importance of early intervention and community awareness to combat stigma. For further information and supports visit www.hse.ie/alcohol or call the HSE Drugs and Alcohol Helpline on 1800 459 459.

Steps to Health challenge 2024

Want to participate?

Form a team of between 2 and 10 participants
Choose a team co-ordinator and a team name
Register your team online
Use a tracking device to count your steps during the challenge
If you have restricted mobility or are a wheelchair user, measure your physical activity levels using tracking devices or an app on your phone

Visit hse.ie/stepschallenge for more information

Every Move Counts Webinar

In case you missed our recent Every Move Counts Webinar, which marked the launch of the new National Physical Activity and Sedentary Behaviour Guidelines for Ireland, or would like to watch it back – you can access it here.

Hosted by Sarah O’Brien, National Lead, HSE Healthy Eating Active Living Programme, HSE Health & Wellbeing, the webinar included a message from Minister of State with responsibility for Public Health, Well Being and the National Drugs Strategy and address from Professor Breda Smyth, Chief Medical Officer, who launched the guidelines.

00:00: Introduction, Sarah O’Brien, HSE National Lead, Healthy Eating Active Living Programme, HSE Health & Wellbeing

02:02: Message from Minister Hildegarde Naughton, Minister of State with responsibility for Public Health, Well Being and the National Drugs Strategy

04:26: Key address by Professor Breda Smyth, Chief Medical Officer

09:44: Presentation from Professor Elaine Murtagh, University of Limerick

24:32: Panel Discussion, hosted by Sarah O’Brien. Panelists: Professor Elaine Murtagh, University of Limerick, Colin O’Hehir, Department of Health, Dr Charlie Foster, RCSI and University of Bristol, Dr Sean Healy, University of Limerick

Use of pornography among young adults in Ireland Webinar

ESRI have launched a new report ‘Use of pornography among young adults in Ireland’ by Anne Nolan and Emer Smyth. If you would like to watch the launch webinar from last Friday, it is available here.

The research, funded by the Health Service Executive (HSE) Health and Wellbeing, draws on the Growing Up in Ireland (GUI) study to look at pornography use among young adults. The research considers the influence of a range of factors on pornography use and examines how the use of pornography is related to key aspects of wellbeing and sexual behaviour.

Making Every Contact Count Update

The Making Every Contact Count eLearning training programme certification has been modified. The eLearning now takes a total time of 3 hours (reduced from 4 hours) covering the six core modules;

2 x Health Behaviour Change; ‘Introduction to Behaviour Change’ and ‘Skills into Practice’
4 x Topic Modules on ‘Tobacco’, ‘Alcohol & Drugs’, ‘Healthy Eating’ and ‘Physical Activity’.

The two new modules on ‘Overweight & Obesity’ and ‘Mental Health & Wellbeing’ are available on completion of the core modules. Completion of the additional modules is encouraged and will now provide additional certification.

Save the date – NUIG Health Promotion Conference 13^th June 2024

This year’s Annual Health Promotion Conference takes place in the context of national policy developments on mental health promotion, including the Health Service Executive Stronger Together: Mental Health Promotion Plan 2022-2025 and the development of Pathways to Wellbeing: National Mental Health Promotion Framework by the Department of Health, which provide strategic direction for promoting positive mental health and wellbeing at a population level in Ireland, underpinned by a whole-of-government approach. Keynote speakers include Stephanie Priest, acting Director General of the Centre for Mental Health and Wellbeing at the Public Health Agency of Canada, Soile Ridanpää, senior specialist at the Ministry of Social Affairs and Health, within the Department for Communities and Functional Capacity in Finland, and Laura Shields-Zeeman, Head of the Public Mental Health Department at the Trimbos Institute (Netherlands Institute of Mental Health and Addiction) and Endowed Professor in Population Mental Health at Utrecht University in the Netherlands. Further details available here.

CALL FOR ABSTRACTS

ILMI eBulletin 16th February 2024

Posted on February 19, 2024 by Cork CIL Admin

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ILMI eBulletin
ILMI eBulletin 16th February 2024

In this issue:
ILMI Employment Consultation spaces
ILMI Valentine’s Staff “Think-in”
University of Atypical for Arts and Disability
‘Never Know Your Place’

Update on ILMI Employment Consultation spaces: Developing a DPO analysis of how systems need to change!

On Tuesday (13th) and Thursday (15th) disabled activists came online to collectively participate in workshops towards developing an ILMI employment campaign.

On Tuesday we explored experiences of accessing mainstream employment support programmes. Interestingly, the majority of activists had more engagement with disability specific employment supports. There was a large discussion on how any system that is designed to support disabled people needs to be led by and staffed by disabled people. There was also a call for greater transparency on how effective these employment support programmes are run and what the actual impact is in terms of meaningful employment of disabled people when they access these services.

On Thursday night, activists explored the provision of information relating to reasonable accommodation and supports. Most disabled people found information about employment supports themselves or through peer networks and noted the need for a centralised information system for disabled employees and employers. There was a need to reform the reasonable accommodation fund and put the resources into the control of disabled people to be able to identify and resource the supports they need to actively participate in employment.

The remaining ILMI employment discussion spaces over February and March are as follows:

Role of entrepreneurs / business start-up supports for disabled people Tuesday 29th February 12 noon to 2pm

Employment and cost of disability Tuesday March 5th 12 noon to 2pm

Mainstream mentoring programmes (including within large corporations CSR) Thursday 7th March 12 noon to 2pm

All these discussions will take place on Zoom and be facilitated to develop collective analysis of how systems should be designed, built and resourced to realise disabled people’s potential in employment. These discussions will be guided by ILMI’s core values of human rights, collective empowerment and social justice.

What will this process deliver?

ILMI will have its own vision for systems change to build expectations for disabled people in accessing employment.

ILMI will have an analysis on what needs to change on different levels.

ILMI can share this analysis with disabled people to inform local and national policy discussions (especially in relation to a new CRPD implantation strategy)

ILMI can focus on key thematic policy issues under our Social Justice value in our new strategic plan to take strategic actions.

To register for specific thematic discussions, email info@ilmi.ie with the discussion you wish to attend.

ILMI Valentine’s Staff “Think-in”

On Valentine’s Day, the Independent Living Movement Ireland (ILMI) gathered for a Staff “Think-in” infused with the organisation’s core values of human rights, collective empowerment, and social justice. Assembled with purpose, our ILMI team embarked on a journey of strategic planning and collaboration, outlining initiatives for the next three months with unwavering enthusiasm. The atmosphere brimmed with anticipation as we recognised the transformative potential of our efforts. Our work holds the promise of dismantling barriers and effecting tangible change in the lives of disabled people across Ireland.

At the heart of the Think-in lay the essence of collective empowerment. Each team member brought forth their unique insights, skills, and passion, understanding the pivotal role they played in realising our organisation’s mission. Together, we explored avenues to support and amplify each other’s projects and work plans, fostering a culture of solidarity and mutual assistance. As disabled people, we embrace our unique intersectionality and welcome others to join our movement. We understand the multifaceted challenges facing disabled people nationwide and are committed to creating an inclusive platform where all voices are heard. Whether it’s through discussions, consultations, programmes, or direct engagement, we invite you to be part of our journey. Looking ahead, ILMI embraces the challenges and opportunities that lie on the horizon. Armed with a strategic plan grounded in human rights, collective empowerment, and social justice, the organisation is poised to lead the charge towards a more inclusive and equitable future.

University of Atypical for Arts and Disability

Recognising that not only physical and economic barriers ‘disable’ us, ILMI is very keen to explore solutions and creative approaches that can effectively dismantle disabling cultural barriers and medical model type non-disabled arts mis-representations with the lived experiences of disabled people. ILMI’s Peter Kearns had meetings and facilitated a disability arts social model session with Belfast based Atypical University (NI Arts & Disability Forum) this week at their new ‘Ledger’ workshop space, named after their former CEO and ILMI supporter Chris Ledger, who Peter had worked with for over 20-years in Disability Arts in Ireland and the UK. Peter talked about disabled people being much more the arts centre ‘new’ audiences and asked attending art venue managers & staff to deal directly with disabled arts & culture makers as ‘new’ producers and directors. ILMI and NI Atypical University’s new CEO Edel Murphy will be meeting-up to explore how both DPOs can work both sides of the border to develop supports for a Republic of Ireland cross-impairment Disability Arts ‘DPO’ and replicate some of the training and arts supports rolled-out across the six-counties with disabled artists and mainstream arts venues. Peter used his Belfast visit to also continue the ongoing conversation between ILMI and Atypical on getting the award winning play NO MAGIC PILL to possibly do a UK funded tour in some theatres from Belfast to Derry.

‘Never Know Your Place’
The upcoming book, ‘Never Know Your Place’ by Martin Naughton, offers a gripping narrative of activism’s ignition—from ordinary individual to passionate advocate. It focuses solely on the beginnings of his journey, tracing his evolution into a leading figure in Ireland’s disability rights movement. This remarkable account inspires not only disabled activists but all advocates of social change.

ILMI is thrilled to announce: there is less than a month away from the release! Published by O’Brien Press on March 11th, the book will be available in both print and e-book formats. For more details, visit www.obrien.ie Catch a glimpse of the book in a sneak peek video by co-author Joanna Marsden.

Copyright © 2024 Independent Living Movement Ireland All rights reserved.
Our mailing address is:
info@ilmi.ie

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ILMI eBulletin 9th February 2024

Posted on February 12, 2024 by Cork CIL Admin

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ILMI eBulletin
ILMI eBulletin 9th February 2024

In this issue:
LMI’s Disability Employment Strategy Consultation
NDA National Disability Strategy

LMI’s Disability Employment Strategy Consultation

Update on ILMI Employment Consultation spaces: Developing a DPO analysis of how systems need to change!

On the evenings of Tuesday (6th) and Thursday (8th) disabled activists came online to collectively participate in workshops towards developing an ILMI employment campaign.

On Tuesday night, activists discussed further and adult education. Topics included the lack of supports in further and adult education, the need to reform provision of Personal Assistance in third level settings, access issues (physical, provision of ISL and so on) and the expectations for disabled people in further education through Education and Training boards (ETBs).

On Thursday night, activists explored internalised oppression and internalised ableism. In an honest discussion in a trusting space, activists spoke about the impact of societal systems on disabled people’s views of themselves. In an uplifting collective space, activists dug into how DPO spaces create that chance for disabled people to share their experiences and look at how to create ways to build solidarity to anlayse and the impact of internalised oppression.

The remaining ILMI employment discussion spaces over February and March are as follows:

Mainstream employment services; including employment activation programmes such as CE, Tus and SICAP Tuesday 13^th February 12 noon to 2pm
Access to information on benefits and pathways; including reasonable accommodations and supports in employment; Thursday 15^th February 12 noon to 2pm
Role of entrepreneurs / business start-up supports for disabled people Tuesday 29^th February 12 noon to 2pm
Employment and cost of disability Tuesday March 5^th 12 noon to 2pm
Mainstream mentoring programmes (including within large corporations CSR) Thursday 7^th March 12 noon to 2pm

ILMI will have its own vision for systems change to build expectations for disabled people in accessing employment.
ILMI will have an analysis on what needs to change on different levels.
ILMI can share this analysis with disabled people to inform local and national policy discussions (especially in relation to a new CRPD implantation strategy)
ILMI can focus on key thematic policy issues under our Social Justice value in our new strategic plan to take strategic actions.

To register for specific thematic discussions, email info@ilmi.ie with the discussion you wish to attend.

National Disability Strategy Consultation: Act Now!

The deadline for completing the National Survey is quickly approaching – Sunday, 11th February 2024. Have you made your contribution yet? Your input is invaluable in shaping a comprehensive strategy that truly reflects the needs all of us disabled people in Ireland. To get involved and share your insights, click on this link

If you prefer alternative methods, the survey is available through various formats, catering to different accessibility needs. You can choose from options such as the Easy to Read version, Screen reader version, Irish Sign Language (ISL) version, or participate via telephone or post. Find the format that suits you best by clicking here: [Accessibility Options]

In addition to the online survey, the NDA invite you to attend two in-person Town Hall events designed to further inform the National Disability Strategy. Here are the details:

1. Galway Town Hall – The registration for the Galway Town Hall is now closed as NDA have reached capacity. To join the waiting list, please email nda-events@nda.ie
– Date: Monday, February 12, 2024
– Time: 11 am to 3 pm (including lunch)
– Location: The Galmont Hotel & Spa, Lough Atalia Road, Galway, H91 CYN3

2. Cork Town Hall
– Date: Saturday, February 17, 2024
– Time: 10:30 am to 3 pm (including lunch)
– Location: Clayton Hotel Cork City, Lapp’s Quay, Cork, T12 RD6E, Ireland

To register for the Cork Town Hall, click on this link

Your participation is crucial in shaping policies that directly impact the lives us as disabled people. Make your voice heard and be a part of this important initiative!

Copyright © 2024 Independent Living Movement Ireland All rights reserved.
Our mailing address is:
info@ilmi.ie

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ILMI will never pass on your personal data to any third party.

ILMI eBulletin 2nd February 2024

Posted on February 6, 2024 by Cork CIL Admin

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ILMI eBulletin
ILMI eBulletin 2nd February 2024

In this issue:
LMI’s Disability Employment Strategy Consultation
Age Action
Disability Arts
Leitrim DPO
ILMI VOICE
We Are Human Too
Abuse against Disabled Women Research Opportunity
NDA National Disability Strategy

LMI’s Disability Employment Strategy Consultation

IMAGE: two Zoom screen shots of the participants

ILMI’s Disability Employment Strategy Consultation recently concluded sessions two and three, fostering robust and solution-oriented discussions exclusively for disabled people. Leveraging our collective expertise and experience, our participants engaged in deep conversations, contributing valuable insights that will shape a distinctive and impactful outcome.

During the “Expectations for Disabled People in Primary and Post-Primary Education” session held on Tuesday, January 30th, discussions delved into crucial topics such as Career Guidance, the experiences of disabled people in educational settings, the pivotal role of Special Needs Assistants (SNAs), and the importance of teacher training colleges, encompassing teacher expectations and in-service training.

Moving forward, our session on Wednesday, February 1st, centred on the theme of “Parental Expectations.” The dialogue explored the positive influence that high parental expectations can have on the lives of disabled people. Participants delved into identifying supportive measures that could enhance parental expectations for their disabled children. Thought-provoking questions were posed, prompting participants to consider what changes they would advocate for in the realm of parental expectations and why.

We extend our gratitude to all participants for their lively contributions. Looking ahead, we eagerly anticipate the upcoming session on “Experiences of Further Education and Training,” scheduled for Tuesday, February 6th, from 7 pm to 9 pm. To participate, kindly email info@ilmi.ie. The session will be conducted via Zoom and is exclusively open to disabled people. Your involvement is crucial as we collectively work towards positive change.

ILMI and Age Action

IMAGE: Photo shows Age Action Strategic Plan Launch and Board Day in The Spencer Hotel, Dublin. ILMI’s Fiona Weldon is a board member.

On the 31^st of January, Age Action launched their new strategy plan. Both staff and board members had the opportunity to meet and greet and delve into the many facets of the organisation. The Cara and Repair service and the Get Started Programme were discussed with great interest.

Other things highlighted included the issue of Ageism and internalised ageism, and how activism can be used to capture the collective voice of older people to shift mind-sets and promote the many qualities that older people bring to their local communities.

ILMI Disability Arts

IMAGE; photo shows Peter and 2 people sitting at a table

ILMI was delighted to have a face-to-face meeting with the Arts Council’s new Access, Diversity and Equality Officers at the roadshow in Sligo’s Model Arts Centre. ILMI’s Peter Kearns championed the role of local DPOs, such as Sligo and Leitrim, in their use of disability arts to promote positive diversity cultural narratives and discourses around the representation of disabled people in mainstream arts. Peter re-iterated ILMI’s wish for the Arts Council’s strategic support for a national cross-impairment social model led disability arts DPO to collectively realise the #UNCRPD Article-30 requiring States Parties to ensure accessibility of cultural materials, activities and heritage. It also obliges them to ‘enable’ disabled people to have the opportunity to develop and utilise their ‘creative, artistic and intellectual potential’. ILMI’s meeting with the Arts Council was about highlighting the need for appropriate policies to enhance cultural participation of disabled people.

Leitrim DPO

Image : photo of Peter with 12 people in the theatre seats

First day back for Leitrim DPO advocacy & drama at Manorhamilton Glens Arts Centre rehearsing to take their Theatre of the Oppressed play about the Dept of Social Protection Green Paper on proposed new disability payments

ILMI VOICE Green Paper Discussion

IMAGE: poster with text that is detailed below

Attention to all residents in the VOICE counties – Cork, Kerry, Tipperary, Waterford, Wexford, Carlow, and Kilkenny! Seize the opportunity to voice your opinions on the Green Paper regarding Disability Reform and Employment.

On the upcoming Wednesday, 7th February, from 12 noon to 1 pm, Peter Kearns, ILMI’s DPO Development Officer, will lead a session on the Green Paper via Zoom. The insights gathered during this discussion will be compiled and submitted to the government.

To obtain the link for attending the online meeting:

– If you reside in Cork, Kerry, or Tipperary, please contact Nicola at 087 7189237 or email her at nicolameacle@ilmi.ie

– For those in Waterford, Wexford, Carlow, or Kilkenny, please reach out to Paula at 087 1630433 or email her at paulasoraghan@ilmi.ie

Don’t miss this chance!

We Are Human Too
A co-production of the Clare Leader Forum.

IMAGE: Cover of the book in black and white a maze with a red dot and text that reads “We Are Human Too”

This ground-breaking book delves into the dark reality of neglect, abuse and deprivation of liberty faced by disabled people in Ireland. Edited by Ann Marie Flanagan, it’s a testament to the activists who challenged limiting attitudes and fought for emancipation, independent living, and human rights. This book emerges as a powerful narrative of claiming one’s own freedom. It’s a call to action for society to reject ableism, transcend charity models, and stand in solidarity.

We Are Human Too book launch. Everyone come celebrate! Please book your free ticket NOW! click here Friday 1st March at 12 noon at the The Templegate Hotel in Clare (Doors open 11:45)

You can order your copy from the Ennis Bookshop Online Store after the launch date and if you sign up for their newsletter there’s a 10% off deal! If you can’t make the launch in Clare make sure you get your copy of this ground breaking book!

IMAGE: photo shows some of the members of the Clare Leader Forum

Abuse against Disabled Women

IMAGE poster with text detailed in the post, with Trinity and women’s aid logos

Advertisement for a confidential research opportunity, abuse against disabled women by their partners is a severe problem. If you identify as a disabled woman and have experienced abuse through a romantic partner or partners, please spend an hour participating in an interview. Please email Susan Flynn at sflynn7@tcd.ie or Sowmia Sundaresan at sundarsl@tcd.ie to find out more or communicate your interest in participating. Thank you.

National Disability Strategy Consultation: Act Now!

In addition to the online survey, the NDA invite you to attend two in-person Town Hall events designed to further inform the National Disability Strategy. Here are the details:

2. Cork Town Hall
– Date: Saturday, February 17, 2024
– Time: 10:30 am to 3 pm (including lunch)
– Location: Clayton Hotel Cork City, Lapp’s Quay, Cork, T12 RD6E, Ireland

To register for the Cork Town Hall, click on this link

Your participation is crucial in shaping policies that directly impact the lives us as disabled people. Make your voice heard and be a part of this important initiative!

Think Brain Health: Discover how healthy behaviours support your incredible brain webinar

Posted on February 1, 2024 by Cork CIL Admin

We recently hosted our Think Brain Health: Discover how healthy behaviours support your incredible brain webinar, which was live streamed last week (Wednesday 24th January). In case you missed it, or wish to watch it back, you can access it here.

During this webinar, which was hosted by HSE Healthy Ireland and the National Dementia Office, Sarah Mc Cormack, HSE Healthy Ireland Lead, Health & Wellbeing was joined by expert panellists to discuss our brain and the healthy behaviours we can adopt to look after it. Topics covered included physical activity, healthy eating, sleep, social connectivity, avoiding harmful use of alcohol and not smoking.

We had high engagement from our audience on the day, and received very positive feedback following the webinar.

03:35 Dr Seán O’Dowd, Consultant Neurologist, Tallaght University Hospital; and Clinical Lead, National Dementia Services
14:05 Panellist discussion with Professor Brian Lawlor, Professor of Old Age Psychiatry and Site Director of Global Brian Health Institute, Trinity College Dublin, Catherine Blake, Dean and Head of the School of Public Health, Physiotherapy and Sports Science, University College Dublin, Dr Seán O’Dowd, Consultant Neurologist, Tallaght University Hospital; and Clinical Lead, National Dementia Services & Cathy McHale, Advanced Nurse Practitioner, Institute of Memory & Cognition, Tallaght University Hospital
44:38 Q&A with Paul Maloney, Programme Manager, National Dementia Services, Services for Older People, Change & Innovation, HSE
54:14 Panellist take-home message

As promised, please find links to information, resources and supports to help adopt and maintain healthy lifestyle behaviours below:

• A variety of booklets, leaflets and resources can be downloaded/ordered from www.healthpromotion.ie, which includes The ‘Know Your Numbers Card’, a useful reminder for you to get to know more about key numbers that influence your health and wellbeing (blood pressure, cholesterol, blood sugars, body mass index, waist measurement, alcohol, healthy eating and active living)

Physical Activity
• Physical Activity Guidelines
• HSE Free Online Yoga, Pilates and Strength and Conditioning exercise videos

Healthy Eating
• Information on making healthy choices; planning and preparing food, including portion sizes.
• 101 Square Meals Recipe Book: Easy-to-prepare, low-budget, tasty and nutritious recipes.

Quitting Smoking
For free support to help you quit smoking:
• Visit www.quit.ie
• Call 1800 201 203
• Email support@quit.ie
• Free text QUIT to 50100

Avoiding Harmful Use of Alcohol
• For resources, including a directory of local supports and counselling services, a ‘Self-Assessment Tool’ and ‘Drinks Calculator’ visit www.askaboutalcohol.ie.

Mental Health and Wellbeing
• Information and resources for the public available on www.yourmentalhealth.ie.
• Resources available on www.healthpromotion.ie under the ‘Mental Health’ topic.

Sleep
• Learn tips for better sleep.

Community Supports and Social Connection
• Social prescribing is about making contact with a range of non-clinical community supports which can have significant benefits for their overall health and wellbeing. Visit www.allirelandsocialprescribing.ie/services-map for a list of social prescribing services and their contact details across the country.
• Libraries Ireland – Find your local library to avail of lending services, online learning and information about what is happening in your community. As part of the Healthy Ireland at Your Library programme each library has a dedicated section with books, information and resources on health and wellbeing in a relaxed and comfortable environment.

For HSE Staff
• The HSE ‘Staff Health and Wellbeing – Resources and initiatives for adopting healthy behaviours’ brochure presents resources that have been developed at a national level and are available to all HSE staff to support their Personal Health and Wellbeing and to create supportive environments.

Thank you for your support, and if you require any further information please email HSE Healthy Ireland: healthyireland@hse.ie or the National Dementia Office: understandtogether@hse.ie
Go to the HSE Health and Wellbeing Website & our Ezine for more, listen to our Podcast, follow on Twitter, subscribe free on YouTube & join our Mailing List

ILMI eBulletin 29th January 2024

Posted on January 31, 2024 by Cork CIL Admin

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ILMI eBulletin
ILMI eBulletin 29th January 2024

As always if you want to know more about any of these articles or ILMI’s work in general then do get in touch. You can reach us at info@ilmi.ie

In this issue:
Joint Committee on Disability Matters report
ILMI Disability Employment Strategy
ILMI in TY
ILMI in MDI
NTA Mystery shoppers
ESRI Research
NDA NDS Consults Cork/Galway

Joint Committee on Disability Matters report on harmonisation of national legislation and the UNCRPD

On Wednesday 24th January, the Joint Committee on Disability Matters launched their report “Towards Harmonisation of national legislation with the UNCRPD”. This report reviews all articles of the UNCRPD and how they are progressing in an Irish context.

The progress review is based on information received from the Committee, including presentations and submissions made by DPOs such as ILMI. The Committee has judged progress has been made, and whether it is limited or good progress. It also notes whether there is no progress or where the situation has worsened.

Over the 33 articles reviewed, the Committee in its view feels good progress has been made on four articles with limited progress on twelve articles. It notes no progress on eleven articles and regression on two. Worryingly, the two articles that the Committee have noted a regression or worsening of circumstances are article 19 (Independent Living) and article 25 (Health).

The Committee report also makes a number of progressive recommendations to realise the UNCRPD, including a right to independent living and the need for legislation to a right to Personal Assistance, as per the ILMI PAS NOW campaign.

You can read a copy of the report here

Join the ILMI Disability Employment Strategy Online Discussion Series!

IMAGE: a cartoon book and laptop with text that reads “We invite you as a disabled person to be a part of our ILMI Disability Employment Strategy Online Discussion Series!. Navigating Education – Expectations for Disabled People. Tuesday, 30th January at 12 noon to 2 pm, via Zoom. To register email info@ilmi.ie

Your expertise is the driving force for change!

At ILMI, we believe in the power of collective empowerment.

We believe that real inclusion comes from disabled people bringing their lived experience to collective discussions. We believe that disabled people are the experts and know what real inclusion looks like. We know that in a DPO we can develop our own critical thinking about how systems and structures need to change to bring about real change.

This is what are going to do to develop solutions-focused employment strategy, one that is practical and designed to work to meet disabled people’s needs. That’s why we invite you as a disabled person to be a part of our participative online discussions, where your journey becomes the foundation for crafting an ILMI Disability Employment Strategy that truly works for everyone.

All the themes were Co-Created with the “Strategies for Change” (SFC) Employment Working Group:

Next Session: Navigating Education – Expectations for Disabled People Tuesday 30^th Jan at 12 noon to 2pm .email info@ilmi.ie to register

As a disabled person, you are the expert in your own life. You know the barriers, the challenges, and most importantly, the solutions. Join us in this collaborative effort to tease out the nuances, explore themes in-depth, and create a disability employment strategy that leaves no one behind.

This is more than a consultation session; it’s a dynamic exchange of ideas, a convergence of experiences, and the genesis of a strategy that paves the way for inclusive and meaningful employment opportunities for all disabled people.

SOUTH DUBLIN CoCo ‘TY’ NOISE MUSIC COLLECTIVE and ILMI WORKSHOPS

IMAGE: South Dublin CoCo ILMI & Noise music Collective creative writing workshop for lyrics on lived experiences with TY students… a legacy of our work with Selina

Building on years of dedicated Disability Equality advocacy with South Dublin County Council, spearheaded by Selina Bonnie, ILMI is thrilled to return to Clondalkin post-primary schools for ‘TY’ programs, offering creative-writing workshops centred on the ‘Lived Experience’. These workshops, now a permanent fixture in South Dublin TY new year programs starting from 2024, are made possible through funding, a poignant legacy from our dearly departed Selina. Under the guidance of ILMI’s DPO Development Officer, Peter Kearns, these sessions aim to empower young people to craft their own lived experience lyrics. Partnering with NOISE Music Collective, the lyrics will be transformed into songs and ballads. Peter Kearns notes, “These engaging sessions with TY students in mainstream schools not only allow us to connect with disabled youth but also pave the way for them to consider joining our new Dublin DPO groups, particularly a Dublin Youth DPO gang.”

ILMI in MDI
On Wednesday Fiona was invited by Tania Quill (Project Officer of MDI) to speak at the Launch of Their Case Study Report. In Fiona’s presentation she talked about the importance of Independent Living as professed by the Disabled Peoples Movement. She explained that Independent Living is a philosophy, a “belief” and a particular way of living your life. Independent Living practitioners are Disabled People who are very aware that the world needs to change in order to accommodate/include them and not the other way round – it is embedded in social model “thinking”. Independent Living was born as a reaction against a tradition of institutional and/or family-based care and both “believers and thinkers” who require human support seek it in the form of Personal Assistance (PA).

A PA is an individual who is contracted by a Disabled Person to provide them with the support they need in different aspects of daily living including, personal support, domestic tasks, assistance at school, university, in the workplace, or when out and about.

Fiona told the audience that Home-Helps are NOT PA’s, Carer’s are not PA’s and Health Care Assistants are not PA’s. These people might be very nice and good at their job but if you do not choose them, or have the freedom to direct what needs doing then you are not in control.

Personal Assistant Users are very clear what Independent Living is and what it is not. They know that it is not about living on their own or doing things by yourself for yourself, it is being in control of how things are done. But moreover, having a PA supports us to life “self-determined lives”. PA’s is an interdependent relationship, PA supports us both inside and outside our homes and they get paid – it is a win win contractual agreement.

Disabled people need to be aware of large scale traditional disability service providers as these are in the business of providing specialised services that keep Disabled People from living like everyone else. Know that these services do not have any quality of life outcomes and will never relinquish their power even if they are doing a bad job.

Henceforward, Disabled People that need human support must demand Personal Assistance over any other service offered.

“We need to come together, using our lived experience “as a collective, and as a force not to be reckoned with” to dismantle the systems that “exert power over us”

Join our Movement and become “the Change Makers”.

NTA Mystery shoppers
Interested in carrying out some mystery shops on public transport? Then contact Sarah@banda.ie at the research company Behaviour and Attitudes (B and A). They are hoping to carry out the Mystery Shops by disabled people and older people in February/March and September/October of this year.
B and A would like a range of people on various types of transport nationwide and they will inform people if they are a suitable candidate and what the payment structure is.

ESRI Research
The recent research from the ESRI sheds light on the pervasive problem of ableism, uncovering how negative stereotypes surrounding certain impairments fuel prejudice and discrimination. The study, involving 2000 adults, emphasises that while society generally condemns prejudice against disabled people, higher levels of ableism are observed towards “mental health conditions”, “intellectual disabilities”, and autism compared to physical or sensory impairments. Notably, a connection between ableism and sexism was also revealed, indicating the complex interplay of biases. Ailbhe Conneely’s article for RTE further underscores the impact of ableism on disabled people’s lives, revealing that negative stereotypes can be employed to justify prejudice. The study shows that creating more inclusive communities and workplaces may be instrumental in combating ableism, with respondents familiar with disability exhibiting lower levels of prejudice. Dr Shane Timmons, the lead report author, highlights the importance of addressing subtle ableist beliefs to create a more inclusive and understanding society.

Investing in inclusion is the key to dismantling ableism. The report notes, “Having a close relationship with someone who has a disability predicted more positive attitudes across social contexts.” This insight highlights the transformative impact of personal connections in fostering understanding and breaking down prejudices. To effectively combat ableism, there needs to be a steadfast commitment to realising the UN Convention on the Rights of Persons with Disabilities (CRPD). Investing in inclusion across various aspects of society, including health, education, and employment, is key. By removing societal barriers and creating conditions where disabled people can access mainstream services and spaces as equals, we pave the way for a more equitable and compassionate society. In essence, the path to eradicating ableism lies in actively fostering inclusion, embracing the principles of the CRPD, and integrating awareness of ableism into the everyday societal psyche and lexicon of the Irish population, where it can be recognised, acknowledged, and challenged, fostering empathy and dismantling discriminatory attitudes that impact on our lives on a day-to-day basis.

ESRI Press Release with links to the research on this link

RTE Report from Ailbhe Connelly on this link

NDA NDS in person Consultations Cork and Galway

All info on this link

Cork
A free public in-person Town Hall event will be held in Cork on Saturday February 17, 2024, to help inform the National Disability Strategy.
Town Hall Details
Time: 10.30am to 3pm including lunch
Location: Clayton Hotel Cork City, Lapp’s Quay, Cork T12 RD6E, Ireland.
Please visit https://www.surveymonkey.com/r/FTTF27R to register.
Galway
A free public in-person Town Hall event will be held in Galway on Monday February 12, 2024, to help inform the National Disability Strategy.
Town Hall Details
Time: 11am to 3pm including lunch
Location: The Galmont Hotel & Spa Lough Atalia Road, Galway, H91 CYN3
Please visit https://www.surveymonkey.com/r/YLDG69B to register.

Category: News

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As always if you want to know more about any of these articles or ILMI’s work in general then do get in touch. You can reach us at info@ilmi.ie

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