ILMI eBulletin January 29th 2021

ILMI submission in relation to Dying with Dignity Bill

Disabled People and the Dying with Dignity Bill: Prioritising the right to die, over rights to live

“We are not Pawns, we need to be listened to and heard in this discussion”.

Independent Living Movement Ireland submission in relation to Dying with Dignity Bill January 2021 Full PDF   Full Word Document

ILMI Education group: Language

IMAGE: language graphic

Disabled children and disabled young people have been the subject of media coverage in the last number of weeks. There has been a very worrying trend where media have debated school closures and the impact on disabled children and young disabled adults. Moreover, there has been a total absence of voices from disabled children and young adults in this discussion.

In January ILMI called for Young Disabled People’s Voices to be heard in discussions about education and COVID-19 and we called on all media, Government departments and teacher unions to directly reach out to young disabled people in discussions about their education support needs during the COVID-19 lockdown. As we know language is a very powerful and evocative tool and unfortunately we have seen the use of much medicalised language in these debates day in and day out.

On Friday the 19th February @ 10:30am ILMI will host an education group to explore how we as a collective can influence the language used in the media, with our government colleagues, in education and in society as a whole. If you are interested in a discussion around that importance of language we want to hear from you!

Email our policy officer on

ILMI at INAR Irish Network Against Racism


On Tuesday 26th January, James Casey of our ONSIDE project gave a presentation to the members of the Irish Network against Racism of which ILMI is a proud member. INAR is a national network of diverse civil society organisations committed to combatting racism and all related forms of discrimination in every sphere of life in Ireland. James talked about the social inclusion workshops of the ONSIDE project and also the IT workshops and how we are actively looking for disabled people in direct provision, amongst migrants and Traveller communities and beyond, he also talked to the members about the Onside Information Day which is happening in February (More on this in the next E-Bulletin). Thanks to INAR for the opportunity to present to the other members of the INAR network.

Strategies for Change (SFC)

IMAGE: Strategies for Change (SFC) logo with picture of Fiona Weldon

In this week’s SFC session we explored the medical, charity and social model of disability and the effects that it has of disabled people. Some of the comments from participants included;

“The medical model makes me so angry”. “The HSE forces us to use the medical model to get the equipment we need to enable us to live our lives”

The charity model of disability was then explored. For those that don’t know what this is – again created by non-disabled people, this depicts us as again tragic and again pitiful and is used to use and exploit us to fundraise. Again disability is seen as the problem of the body and good non-disabled people should pity us and give disability services/organisations (run by non-disabled people) monies to “service us”). The impact of this model as told by participants include:

“Our impairments have to be cured”
“Victims of our impairments”
Other comments – “you poor pet” – we might be “lucky” and get a pat on the head, we can’t take part in “normal” everyday things and of course we “cannot learn” so we cannot work.
“The medical model is like being in a Straight jacket”

As quoted by Peter Kearns “The key to unlocking this process of transformation of disabling barriers lies in the knowledge & life experience of disabled activists working from the social model. This is why WE are experts of the ’Lived-Experience’ and need to take the lead as Disabled-Activists at all stages of Transformation of disabling Societal oppression”.

For information please contact the SFC Project officer

10 Weeks to Wellness programme

IMAGE: poster for 10 Weeks to Wellness programme

A reminder that our 10 Weeks to Wellness programme kicks off next week. We will be closing registration for this programme on Monday and have very few spaces for both the nutrition and yoga communities remaining.

The programme starts on Tuesday (February 2nd) and will run as follows:
– Tuesdays: Eat Well Feel Better, with nutritionist Alexia Treanor (5 Week Programme running every Tuesday from Feb 2nd from 11am to 12pm)

– Thursdays: Yoga and Stretching, with fitness coach Sean Power (10 Week Programme running every Thursday from Feb 4th from 12pm to 1pm)

You can pick and choose what communities you wish to take part in. Of course you can participate in both communities but you have to register for each of the Tuesday and Thursday classes. To register for your free place please email before Monday.

We look forward to a positive 10 week programme!

ILMI Cork Community Platform

IMAGE: shows screenshot of ILMI Cork Community Platform

Brilliant ILMI Cork Community Platform with a fantastic presentation by Helen Roche of Cork City South Citizens Information. Very informative and great discussion afterwards.

Join us on the 11th February 3pm for the next ILMI Cork Community platform email to sign up

Adam Pearson ILMI Social Night

IMAGE: Adam Pearson ILMI Social Night zoom screenshot

A fantastic Social Night with Guest Speaker Adam Pearson! Brilliant craic and many, many thanks to Adam for sharing his time with us! Genuinely great evening.  Adam Pearson Nothing about us, without us!

Next ILMI Social night 11th February 2021 NEVEN MCGUIRE

IMAGE: shows poster for ILMI Social night 11th February 2021 NEVEN MCGUIRE

Neven Maguire is one of Ireland’s best loved chefs. The restaurateur and media personality is well known for his award-winning MacNean House & Restaurant. He has published 12 cookbooks and is currently to be seen on RTÉ One with his seven part series the popular “Neven’s Irish Seafood Trails”. This is the third series Neven has dedicated to seafood, and his search for the finest and freshest produce takes him to Kerry, West Cork, Mayo, Galway, Louth and Clare.

At the core of Neven’s philosophy is a commitment to using only the finest local seasonal ingredients. Email to register

The DPO Coalition Webinar

IMAGE: shows zoom screenshot of DPO Coalition Webinar

The DPO Coalition held a very successful webinar this evening about the UNCRPD and Disabled People can feed into the State’s First report to the CRPD Committee. The webinar was expertly led by the DPO Coalition Chair Jacqui Browne, with inputs from Alice Griffin from Dessa and Dr Lucy Michael. Many thanks to all who attended on behalf of the DPO Coalition Irish Deaf Society Disabled Women Ireland The  National Platform Of Self Advocates Ireland.

ILMI and European Network on Independent Living – ENIL

LMI had a great meeting 27th January with our colleagues in the European Network on Independent Living (ENIL).Photo shows  Kamil Goungor – Development Officer and TRIPS Project Assistant, Ines Bulic Cojocariu – Deputy Director ENIL and ILMI staff Shelley Gaynor, James Cawley, Damien Walshe (CEO) and James Casey

The ONSIDE update

IMAGE: Screenshot of some of the latest ONSIDE graduates and Onside team at the feedback session.

What an awesome way to start the week! Monday 25th of January, the ONSIDE team had one of our feedback sessions with the latest group of participants who have completed the workshops. In the anonymous polls, we learned that 95% of participants found the workshops useful and educational and 100% of people would recommend the programme. It was exciting to hear about what plans the guys have for their new found skills – one person is going to learn Polish, another person is going to try their hand at Croatian, some folks are accessing their local library to download books, another one of the guys is now able to use audio books better and one of the participants is brushing up on their admin skills to start looking for a new job! All the participants are looking forward to taking part in further ILMI groups and connecting more with their local communities, thanks guys – it was great to see you all!

Onside project Special EU Programmes Body – SEUPB

Contact for further information.

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